DS ConneX: Connecting Grandparents, Adult Sibs and Young Sibs
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DS ConneX: Connecting Grandparents, Adult Sibs and Young SibsLouise Bowden2019-08-14T19:24:41+00:00
Welcome to DS ConneX
DS ConneX is network of support groups specifically for parents, grandparents, and siblings. Each family member, young or old, is invited to join a group at anytime. This is a safe place to share your experiences, joys, or concerns about having a family member with Down syndrome. The goal of ConneX is to strengthen family support and provide you with needed information and resources. Each group is catered towards the individual needs of moms, dads, grandparents, and both adult and young siblings. New members are always welcome to join us for drop in meetings.
Founded in 1990, the Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns.
Sibs is a program for brothers and sisters of disabled children and adults in the United Kingdom. Website resources include a private sib-to-sib chat room, resources for young sibs, parent and professional support guides for young siblings, and guides for adult siblings. Sibs ensures that siblings are not alone in their feelings, responsibilities and actions as well as providing support materials for every type of sibling relationship. A great resource for siblings, parents, and professionals who are looking to support the sibling relationship.
DS ConneX for Adult Sibs is a DSNetwork support group for adult siblings and non-parental guardians (ages 18+) of individuals with Down syndrome.
Siblings will likely be involved in the lives of their family members with Down syndrome longer than anyone else. Siblings are important and play life-long roles in the lives of their sibling with Down syndrome. We often face the same challenges that parents experience – isolation, a need for information, concern about the future, and the demands of constant caregiving – as well as our own. As the largest advocacy group for our siblings with Down syndrome, it goes without saying that we understand the challenges inherent in living with Down syndrome. It doesn’t matter if you live with your sibling, are their full time caregiver, guardian, or in the process of a transition etc- All siblings are welcome at our monthly meetings!
DS ConneX #4AdultSibs celebrates and supports this ordinarily unique relationship.
DS ConneX: For Young Sibs
DSNetwork is committed to supporting siblings of people with Down syndrome by creating welcoming communities for siblings across the lifespan; improving the range and availability of sibling support services; and providing education about sibling-related issues. DS ConneX for Young Sibs is for brothers, sisters, cousins and other close family members of an individual with Down syndrome between the ages of 8 and 17 years old. This group meets for quarterly SibShops, where siblings come together for fun activities and participate in a structured workshop specifically designed for sharing the joys and challenges inherent in being a sibling.
2019 Sibshop dates include: March 2nd, May 18th, August 10th, and October 19th.
Being a grandparent of a child with Down syndrome can be a great joy. You have the opportunity to see your own child become a nurturing parent and feel a swell of pride as they experience parenthood for themselves. You have years of parenting knowledge to draw upon if you are needed (that phone call asking if you think the baby is ready to start solid food or when to call the doctor, etc). And then, the most important part, that beautiful child!
As a grandparent of a child with Down syndrome, your relationship can be especially important. You provide both emotional and practical support for parents as well as providing support for your grandchildren. You have come to love and accept them for everything they are and you love them unconditionally. DS ConneX for Grandparents is designed to support you in your role as a grandparent of a child with Down syndrome. This group meets to discuss Down syndrome and what it means for the family, how they can help their sons and daughters and where to find resources and information.
D.A.D.S. (Dads Appreciating Down Syndrome) is a DSNetwork supported group that meets every third Tuesday at the Old Spaghetti Factory in Central Phoenix. The purpose of D.A.D.S. is to assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome. Join other Dads for dinner and engage in conversations around services, therapies, medical appoints, future planning and much more.
Moms’ Night Out (MNO) is a Down Syndrome Network program for women who have a child with Down syndrome. MNO events create opportunities for mothers to gather with friends, share and connect, and foster friendships in a supportive and fun environment. All moms deserve a night out every once in a while!