Helpful Resources
NDSC Adult Sibling Toolkit
Sibling Support Project
Sibs - UK Sibling Support Network
DS ConneX for Adult Sibs is a DSNetwork support group for adult siblings and non-parental guardians (ages 18+) of individuals with Down syndrome.
Siblings will likely be involved in the lives of their family members with Down syndrome longer than anyone else. Siblings are important and play life-long roles in the lives of their sibling with Down syndrome. We often face the same challenges that parents experience – isolation, a need for information, concern about the future, and the demands of constant caregiving – as well as our own. As the largest advocacy group for
our siblings with Down syndrome, it goes without saying that we understand the challenges inherent in living with Down syndrome. It doesn’t matter if you live with your sibling, are their full time caregiver, guardian, or in the process of a transition etc- All siblings are welcome at our monthly meetings!
DS ConneX #4AdultSibs celebrates and supports this ordinarily unique relationship.
DSNetwork is committed to supporting siblings of people with Down syndrome by creating welcoming communities for siblings across the lifespan; improving the range and availability of sibling support services; and providing education about sibling-related issues. DS ConneX for Young Sibs is for brothers, sisters, cousins and other close family members of an individual with Down syndrome between the ages of 8 and 17 years ol
d. This group meets for quarterly SibShops, where siblings come together for fun activities and participate in a structured workshop specifically designed for sharing the joys and challenges inherent in being a sibling.
2020 Sibshop dates include: January 25th, April 25th, May 16th, August 15th and October 17th.
In partnership with:
Being a grandparent of a child with Down syndrome can be a great joy. You have the opportunity to see your own child become a nurturing parent and feel a swell of pride as they experience parenthood for themselves. You have years of parenting knowledge to draw upon if you are needed (that phone call asking if you think the baby is ready to start solid food or when to call the doctor, etc). And then, the most important part, that beautiful child!
As a grandparent of a child with Down syndrome, your relationship can be especially important. You provide both emotional and practical support for parents as well as providing support for your grandchildren. You have come to love and accept them for everything they are and you love them 
unconditionally. DS ConneX for Grandparents is designed to support you in your role as a grandparent of a child with Down syndrome. This group meets to discuss Down syndrome and what it means for the family, how they can help their sons and daughters and where to find resources and information.
D.A.D.S. (Dads Appreciating Down Syndrome) is a DSNetwork supported group that meets every third Tuesday at the Old Spaghetti Factory in Central Phoenix. The purpose of D.A.D.S. is to assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome. Join other Dads for dinner and engage in conversations around services, therapies, medical appoints, future planning and much more.
Official Sponsor of DSNetwork’s D.A.D.S. Group:
Moms’ Night Out (MNO) is a Down Syndrome Network program for women who have a child with Down syndrome. MNO events create opportunities for mothers to gather with friends, share and connect, and foster friendships in a supportive and fun environment. All moms deserve a night out every once in a while!
Official Sponsor of DSNetwork’s MNO: 